chronic fatigue syndrome

[eggnog]

does anyone have this? i need some information. I think i will be diagnosed with this soon. Also, does anyone have a dr recommendation for this? thank you!

[Sticky Davis]

I have a sister with a severe diagnosed case for the last 25 years or so - she's 49 now - and she's become a real expert on how to deal with it and the various alternative treatments that she's experienced over the years. I was at her house in Austin yesterday and she had a whole shelf of books and newsletters on CFS.

She slept 16-18 hours a day at first (and quit her successful profession) which one doctor told her that it was okay to sleep that much - but several years later she ended up with another doctor that told her as tired as feels, to exercise rigorously which she now does and try not to sleep all day. She also follows a very careful diet and has regular medications. She still has to grab naps odd hours of the day - and they have a special quiet room built in her house so she can't hear the family. She's had one child and adopted 4 children since (her husband gets up with the kids at night - often sleeping in their rooms - and gets them off to school - he's a saint) and she even runs marathons now - so though she has found no permanent cure, she has found a way to live a happy productive life with CFS.

(She moved out of Dallas about 20 years ago - and her doctors are all in Austin now - but if you don't find someone to talk with locally, I can put you in touch with her by e-mail. I believe she belongs to several support groups.)

Good luck - and I hope you feel better soon.

[sannice1979]

I was initially diagnosed with this but didn't feel quite right about it. I kept fighting for more tests and answers and found out I have Adult Growth Hormone Deficiency. I'm currently undergoing the stim tests for insurance to qualify for treatment. So if you feel the diagnosis isn't right, keep fighting. I didn't want to be diagnosed with something that has no treatments. Dr. K at Baylor Frisco started me on Provigil and an antidepressant which worked for awhile but after even narcotic stimulants stopped helping I knew something else was wrong.

Originally Posted by eggnog

does anyone have this? i need some information. I think i will be diagnosed with this soon. Also, does anyone have a dr recommendation for this? thank you!

[4leg'd mom]

aka - mommyhood

[hockeymom]

My best friend was diagnosed with it two years ago....she was sleeping 18 - 20 hours a day & still completely exhausted. Unfortunately, it wasn't just CFS...she has Cushing's as well. She had surgery in March & is recovering but it is taking time. Her doc told her that she won't feel much better until her hormones get back to normal. She had to go on disability from her job & went through years of testing before they got the correct diagnosis. She ended up at the Mayo Clinic & then had surgery. Good luck to you....I hope you feel better soon.